The North Midlands MND Care and Research Network was officially launched by HRH The Princess Royal on Tuesday (4 June 2019) at a special event to mark the first anniversary since it was set up.
The Network, funded by UHNM and the MND Association, provides services to people living with Motor Neurone Disease in Staffordshire and parts of Cheshire and is based at the Royal Stoke University Hospital.
The launch recognised a combination of important services provided by UHNM across Staffordshire including neurology, respiratory medicine and palliative medicine and gave staff, patients and their families and carers the opportunity to share how they have benefited from the network.
The collaborative service has been spearheaded by Dr Naveed Mustfa, Consultant Respiratory Medicine and MND Network Co-director and is led by Network Co-ordinator Louise Wilsdon.
Tracy Bullock, UHNM Chief Executive, said: "I can tell, from the people living with the disease I have met , the importance of the services provided by the Network team, not just for the people with this disease but also for their families and carers.
"The Network focuses on collaborative working across health, social care, hospice and voluntary sector agencies and we are pleased that many of our colleagues were able to join us for the launch. Specialist advice and education around MND management are at the heart of the care Network."
Louise said: "We have already created a Specialist Clinic at County Hospital and this will reduce multiple appointments, improve team working and provide services closer to home. We hope to have more clinics across the Network area soon, including one at the Royal Stoke University Hospital."